Newsletter Articles
Awareness Does Not Always Mean Acceptance
Although society is coming around and has become more aware of people, both children and adults with special needs, the sad truth is that they are still uncomfortable. So families learn to blend in, to mask and compensate for the sake of others.
Invisible Diagnosis
So many of us and our family members confront the battles of invisible disabilities on a daily basis. We never know what someone has gone through just to get out the door on any given day.
My Invisible Companion
Yet, every year, starting around September, my brain and body grinds to a halt. Sometimes I need the help of a therapist, and every year I need to take something to help boost my mood. It provides mental strength and the capacity to respond with kindness and grace to those around me. It also gives me the ability to get out of bed, go to work, and do all the things that need to be done.
Flexibility is Key
When it was time to try out church camp, I had a lot of hesitation and even more questions. I offered to accompany him at the camp to be his personal para to assist him. My son attended church camp as a day camper, and he and I spent our overnight time at a nearby hotel.
Visual Supports
By providing information in a visual way that is easier to process and refer back to, we can create communication systems that support and provide structure while helping to prevent challenging behavior.
Caregiver Fatigue
There's a difference between feeling tired and feeling burned out. A tired person can feel refreshed after a nap or a weekend away from work. People who are experiencing burnout will not feel refreshed, may feel uptight or edgy, and can also have anxiety or depression. They can become too tired to take care of their affairs and just aren't who they used to be.
The Story of Two Baptisms
My children wanted to be baptized at the same time. I talked to them about it, but I questioned how much they really understood. During the conversation, when Benjamin thought I would not let him go, he cried and said, "but Mom, everybody gots to be baptized."
Church Camps, VBS, and Retreats
Summer is here and with it comes warm weather, late evenings, vacation Bible school (VBS), and church camps. If you are a caretaker of a child with a disability, and she is interested in attending VBS, church camp or a youth retreat, the preparation process is the same:
A Good Rabbit Never Gives Up
"There is a zero percent chance that he is going to stay in Sunday school today," I said to as we headed out the door to church. My forecast had steadily decreased from 50 percent over the last twenty minutes.
Church Attendance
"We haven't seen them for a while!" "They never come to church anymore." "Why did they stop coming?" The answer is different for many families, but the bottom line answer is always the same: because they can't figure out a way to go to church and provide care for their loved one at the same time.
The Promise is For Your Children
That night God gave us confirmation that He will keep every one of his promises. If there is ever a day that I am struggling, I remember that night when God miraculously filled two autistic boys with the Holy Ghost!
Our Church Doesn’t Work for Our Family
Sometimes it feels like we live in two worlds. In the first world, our church doesn't work for our son.
He wears noise-canceling headphones every time we approach the building. The sound of someone worshipping loudly, emphatic preaching, loud amens or music above 90 decibels causes him to panic.
God Can Put a Cherry on Top
Four years ago, she wanted to be baptized and afterward, prayed to receive the Holy Ghost. She prayed many times but never received it. When she was told the Holy Ghost is a gift, she would ask, "So where is the gift?"
We Added a G-Tube to Our Lives!
A medicine that our child is taking for seizures has a side effect of weight loss. We prayed for an increased appetite and for her to gain weight. Although we just wanted Jesus to touch her and heal her without the help of modern medicine, it didn't happen that way.

